So when Dr. Frame sent me to have my CT Scan and blood work done to finalize that I had gone into remission I was certain I had conquered the cancer and I would be getting better almost immediately. Even if I still had the disease, I just needed to do more chemotherapy... I could handle it if need be.
The weeks leading up to going into remission I had developed a slight cough that would trigger every single time I walked up the stairs, down the stairs, picked something up, and kept me awake some nights (well, I was probably awake anyways...). Every time I would see the doctor he would check my lungs to and every time I seemingly had passed with flying colors. I have always been proud of my ability to handle strenuous activity better than most people whether it was during soccer, hockey, climbing, or racing... I felt that I had the upper hand. This was no longer the case, as I was having to sit down after walking up a flight of stairs or even going on a long stroll was becoming more and more difficult. A side effect from the chemotherapy, it would pass when I stopped taking it.
During the CT scan I have become accustomed to the operators and nurses acting strange around me. They can see that something is wrong, yet they are not allowed to tell you what you have or what they see... that is the responsibility of your doctor. During this last CT scan the practitioner was acting strange... and I called her out on it, "Is there more tumors in my body?" I asked. "No, no, no... I am not allowed to discuss it, but it does not look like there are any more tumors anywhere." Awesome... then I didn't care about anything else. I was done.
The next day I missed a call from Dr. Frame. He left an urgent voice mail telling me that I needed to call him back immediately, and it was regarding my scan. My stomach dropped out of my butt. What now? My poor family and friends cannot take much more bad news from me and I was getting tired of telling it. Didn't he know that? Before I could call him back Kasia called me and broke the news, I had been diagnosed with Pulmonary Fibrosis. We were to meet with him the very next day.
Dr. Frame and I have become very close over the last few months and he refers to me as his All-Star patient. I complain minimally and have accepted each distressing low white blood count and extensions of chemo with open arms. "Thanks for keeping me alive doc" had become a common phrase for when he thought he was delivering bad news. I meant it too. 'Grateful' does not fully grasp the scope of how I feel towards Dr. Frame. He has given me a new life and the opportunity to better myself in a way that few people get the chance. We are the lucky ones. To not take advantage of having cancer and making positive changes in your life would be the real tragedy in it all... that and losing your testicles. He has grown fond of me as well so delivering more bad news was not something he had planned, and you could see in his face that it was hurting him.
Pulmonary Fibrosis is the inflammation of the lungs and can cause holes or tears in your tissue that can be irreversible. Dr. Frame explained the situation; the amount of chemotherapy I endured is not normal... I had passed lung tests with flying colors and physically, minus cancer, was in phenomenal shape. My cancer was new and the decision was to pump me with as much poison as possible for a human to handle. Someone in lesser condition, older in age, younger in age, had smoked cigarettes, slightly overweight, underweight, non-active would not be able to handle it. I had wanted it. I needed them to kill everything in my body that had the possibility of carrying the cancer strand. This was it for me, give me all you can... I can take it, I promise. I was preparing for a war with cancer and I was not going to lose. Pulmonary fibrosis is a side effect we were hoping to avoid.
"What does this mean Doc?" I knew what it meant, I just could not bring myself to thinking it. There was/is a strong possibility I would never be able to play sports again; never put on skis again, never climb another mountain, and I would need to carry around oxygen. Dr. Frame said, "I will never lie to you Robert. There is a possibility you may never get the chance to participate in athletic or strenuous events ever again."
I was defeated. How could I be deprived from what I love so much? I could beat cancer, my will and perseverance were no match for it... and although the recovery would be long, there would still be a recovery. If my pulmonary fibrosis had gone too far it would be irreversible and there would be no recovery, I would become a vegetable. At the time there could have been no worse news for me and for the very first time in my short life I was terrified. I was shaky in the knees, cannot catch my breath, there is a man with a knife hiding in my closet, terrified. I would not be able to handle this I thought... I can't do this. The scariest part was that it was out of my control, I could not fix this by being strong or by sure will. Praying that quite possibly my lungs had not reached the point of no return was the only option... A good option, but I would have liked more. I would have rather been diagnosed with cancer for the third time rather than get this news.
My parents didn't understand. "Didn't they check your lungs? How could they not have known?!" My parents tried to stay positive, but they were confused and upset as I was. I was still alive and I had plenty to be grateful for... but I might as well have gotten the news that I could be paralyzed. I was tired and beaten down. I went from the elation of being done with cancer to the lowest I had ever been. My mom immediately sent dispatches across the country for friends and family to keep me in their thoughts and to pray for healing. She wanted me to be better and didn't know how to make her son feel better, she knew I was taking this harder than anything else I had ever endured. My poor sister was tired of it... she wanted her big brother to be better and could not take getting any more bad news. She needed it to be over and so did I.
This was a fight I was unable to participate in and it scared the shit out of me. A best friend of mine, Aidan O'Connell's father, Mr. Tommy O'Connell, who had quite the hand in raising me due to being at his house a large portion of my childhood, related my cancer bout to a boxing match he was sure I would win. Every time I went through another round of chemotherapy or surgery he would tell me I had won the round and give encouragement for the next... similar to Mickey in Rocky. I had reached the 12th round by all accounts and I was on the ropes trying to stay in the fight.
Dr. Frame immediately put me on a prescription of steroids in hopes to reverse the damage. Kasia had planned a trip to the Baja in Mexico the following Saturday and there was a chance if my lungs did not improve that I would not be able to get on a plane. We were to meet back in 7 days where he would be able to tell whether my lungs were on the way to recovery. The following days I did not speak much, I was in a depression of sorts. I have never felt so low. How could I never be able to stand on top of another mountain peak? How could I never strap on skis again and 'shred the gnar'? It was unfathomable, and the unknown was driving me crazy.
That Friday we met with Dr. Frame, he carefully tested my lungs for about 10 minutes before he sat down and let me know that the drugs were seemingly working. My lung capacity was getting better and I could go to Mexico, and "take it easy."We hugged, Kasia hugged, I could hear a chorus of angels singing in the background, etc. I was stoked, to say the least. Now it was up to me, and based on how I treated myself my lungs would be back to normal at some point. The news traveled to Georgia where my mom and her teachers at her church pre-school supposedly danced, cried, fist pumped and hugged each other. The thought that you can affect so many people is humbling and when I hear stories like that it makes me fairly emotional every time. All in all, I am grateful for the opportunity to go through it... it was just another test in a long, exhausting process and on the upside I have gotten to take steroids for the first time. Contrary to what some people might tell you, I have never taken steroids before... but they are kind of fun. You want to eat ALL THE TIME. And for someone that has been force feeding himself due to nausea and everything tasting like metal it has been radical.
Kasia and I went to Mexico to celebrate being cancer free with my good friends Adam and Annie, and their family. I went surfing every day (not what the doctor ordered), hung out on the beach, flew kites, and had one of the best times of my life. I had actually done it and i was on the mend... we spent 7 days in paradise completely blocked out from the rest of the world without email, facebook, TV, and every other distraction.




We came back and I immediately went back to work on Tuesday full time. I just finished my first full week of going back and I am exhausted... who knew sitting at a desk could take so much out of you? Life could not be better and I am blessed to be alive. My hair is growing back...kinda, I am slowly regaining my strength (the steroids I assume help), I got a good woman, and I am happy. I am the lucky one.
I have been in a few fights in my life, I have come close but I have not lost one yet... I was not about to start now. 12th Round Knockout, right Mr. T?